A young woman fears she could be killed by her own tears because she is allergic to water.
Katie Dell, from Flint, North Wales, suffers with the condition aquagenic urticaria, which is so rare it affects just 35 people in the whole world.
When she cries, her tears bring out a painful rash. And long soaks in the bath are out of the question because they trigger burning inflammation.
The 27-year-old was even forced to give up her job as a dance teacher because her perspiration caused a painful reaction on her skin.
The condition, which can in some people trigger potentially a deadly anaphylactic shock, is getting worse and she fears it will end up killing her.
She said: 'Sometimes I feel like a prisoner in my own home. I have days where I want to crawl into bed and cry but of course, I can't.
'Someone said I could die from it but I don't want to know about my life expectancy. Until they find a cure I just have to live with it. I'm taking each day as it comes.'
Mrs Dell's symptoms began at 16 when she had her tonsils removed. Doctors suspect the pencillin she was given may have disrupted histamine levels in her body.
Her husband, Andy, 32, has given up his job as a delivery driver to be her full-time carer.
She said: 'People didn't understand my condition and would give me a funny look when I told them I couldn't shower.
'My condition is worsening but I don't want to think about what I'll be like in 10 or 15 years.
'Andy has been amazing and does all the things I'm not allowed to do, like the washing up.
'I have to be in and out of the bath in two minutes and Andy has to wash my hair for me.'
There is currently no known cure for aquagenic urticaria but Mrs Dell is trialling a new drug to try to control her condition.
'At the moment I'm taking a drug that transplant patients take,' she said.
'In the same way the drug tells their body not to reject a new liver or kidney, it is telling my body not to reject the water on my skin.
'Next they want to try a drug that cancer patients take to try to build up my immune system.
'The next stage after that is chemotherapy but I don't really want to go down that route because it makes you ill.'
DISCLAIMER: The Views, Comments, Opinions, Contributions and Statements made by Readers and Contributors on this platform do not necessarily represent the views or policy of Multimedia Group Limited.
Tags:
Latest Stories
-
Galamsey: Investigation into attack on Joy News’ Erastus Asare and colleagues already growing cold
30 mins -
Mahama promises construction of stadia in all 16 regions if elected
48 mins -
Dampare has transformed Police training school – Bawumia
51 mins -
America braced as two stark visions collide on election day
53 mins -
NAPO urges Ghanaians to support NPP’s vision for national development
1 hour -
About 95% of PWDs in Obuasi have source of livelihood – MCE
1 hour -
Immigration Service intercepts 54 gallons of fuel
1 hour -
Election 2024: Roman Fada selected as flagbearer for Ghana Freedom Party
1 hour -
Bawumia to launch Ghana’s credit scoring system on Nov. 7
2 hours -
Alan to combat galamsey with strategic youth-centred business model
2 hours -
Agona Swedru chiefs commit to ending child marriage within their jurisdiction
2 hours -
Sunyani Traditional Council endorses Bawumia – NAPO government
2 hours -
Adutwum defends double track in Free SHS, citing research and positive outcomes
2 hours -
‘Prevent and condemn illegal pressure on Judiciary’ – AG to GBA
2 hours -
Mahama alleges biased development allocation by NPP
2 hours